Wednesday, December 26, 2007

How it all began

Last February Debbi came home from a missions trip to Honduras. She has done this several times, and this time , like every other time, she brought home some unwelcome stowaways. Usually these invaders leave within a week or so, but this time she continued to have a swollen lymph node in her neck. Another visit to the doctor - more antibiotics and the message that sometimes those nodes take quite a while to go down.
Skip ahead 9 months - after a complete physical, Debbi mentioned to the doctor that she had this node that has not fully resolved in the last 9 months. Even though all her lab work and other exams were normal, he thought she should have that node "looked at" and made her an appointment at the head and neck surgeon.
The head and neck doctor did a needle biopsy of the node and made and appointment for the results in a week. Now we thought all this was "much ado about nothing" as this was obviously an infection brought back from Honduras that just hadn't left.
The next Friday, we went for the results - The doctor said "there is no easy to tell you this, but it looks like you have lymphoma". Stunned would be an understatement, my first thought was that he needed to review Debbi's chart because what she had was infection, not cancer! But alas, the diagnosis stuck. She was scheduled for an excisional biopsy, where they take the whole node out for a good look. This was scheduled for November 8th.
Well the node came out and was found to be an "indolent (or low grade) follicular lymphoma."
This disease is staged by nodal chain involvement: stage 1 - only one node group involved; stage 2 - more that one group involved but all either above or below the diaphragm; stage 3 - several groups of nodes involved both above and below the diaphragm, and stage 4 is the same as stage 3 but with the addition of having the bone marrow involved. It would take a PET scan and a bone marrow biopsy to determine the staging. (for more info:
http://www.leukenia-lymphoma.org)
After a PET scan we found out that Debbi has involved nodes on both sides of her neck, supraclavicular area, spleen and inguinal areas, which made her a stage 3. The only question left was about the bone marrow. That was answered after the December 2nd bone marrow biopsy. Visually there was no involvement, however the "flow cytometry" (which is basically a way to look at every single cell in a tissue sample), did show a very minimal involvement. While this won't make any difference as to how she is treated, it will help her oncologist predict how her blood counts will react to the chemo.
In her case, watchful waiting was not recommended. She will begin her chemo ( RCVP: rituximab, cyclophosphamide, vincristine and prednisone) on January 3rd. She will get 6 treatments (or cycles), one every 3 weeks for the next 18 weeks. Follow up will be by CT scans, however we don't know the follow up schedule yet.
Debbi is currently doing well, her spirits are good and while not looking forward to chemo, she is looking forward to the new adventure God has for all of us during all this. Please pray for her and us during the riggers of chemo, that her side effects may be minimal, and that we, her family, can support her well. Pray that God may have his will in our lives and that this "adventure" will bring us closer the Him and some way make us look more like Jesus.
If you would like to, you can respond to this letter on this web site or at mamarayl@bellsouth.net. I'm sure she'll check it often. You may also call her at home, (828-628-9171) and don't worry about bothering her, if she isn't in the talking mood, whoever answers will take a message and let her know you called.

Thank you for your prayers and support,

Michael

4 comments:

Dee Warren said...

Hello Mike & Debbie,

We do not ever know what life is going to give us. May 29th I had triple by-pass surgery and five weeks after returning to work I had a mild MI. It was a long summer, but Richard has been a God-send.

Chemo. today is so much more effective than it used to be. We'll remember you daily. Love/Dee Warren

The Rayls said...

Geewillikers Dee!! I didn't know you had been through so much. Glad to know you are doing better. Thanks for the prayers. Debbi

The Rayls said...
This comment has been removed by the author.
Trisha said...

I have visited a number of chemo settings as an observer, and predict that they have NEVER had a patient bring more life, laughter, and "splash" than Debbi Rayl! I am praying for all of you and find comfort knowing that God is not baffled by any of this. Somehow, He will use this for your good and His glory. Love you, Trisha